Literature Research
General Smartphone Apps in Palliative Care https://www.researchgate.net/publication/260999840_Palliative_medicine_and_smartphones_an_opportunity_for_innovation (Stand 25.01.20)
- However, so far the availability of apps specific to palliative medicine is limited.
ePAL (https://www.trialsitenews.com/massachusetts-general-hospitals-smartphone-app-epal-helps-patients-report-cancer-symptoms/ Stand 25.01.20)
- the first mobile app to use patient-reported outcomes and artificial intelligence to significantly decrease pain scores and pain-related hospitalizations in patients with cancer-related pain
- allows patients to monitor their pain and includes other features such as several interventions and an educational library
- AI component analyzes the data to send patients, tailoring educational coaching messages each day
- evidences strong potential use cases for apps such as this—not just for oncology but many other therapeutic areas
Alberta
- App for palliative care services to manage the patients they need to visit or buy patient specific equipment
Medisafe Alarm
- which can remind to take pills, visualize biometric data but not focused on elderly palliative patients from design and does not allow to assess psychometric data
PalliDoc (https://www.pallidoc.de/ Stand 25.01.20)
- Client-server based software for palliative care (for smartphone and tablet) for care documentation à patient status, services performed at different locations, even if there is temporarily no internet connection
- Everything at a sight: Team-specific overviews, symptom assessment with progression curves, medicatioand consumption
- Determination of your approach routes at the push of a button
- With an innovative data exchange concept that allows the provision of captured patient data to the entire palliative care team while still allowing for Internet-independent reading and capturing of data, PalliDoc® (outpatient, inpatient and hospice) focuses on the cooperation of different professions in the care of patients in palliative care.
Palliative Care Tools (https://nilswommelsdorf.de/palliative-care-tools/ Stand 25.01.20)
- Conversion of opioids with bolus calculation (for pain peaks), calculation of infusions (calculation of dosage, run rate, running time, bolus dispensations and with "drop clicker") and conversion of corticoids in one tool.
- Portable in daily work (not only) in palliative and oncological care for doctors and nurses.
PalliKare (https://play.google.com/store/apps/details?id=org.karunashraya.pallikare&hl=de Stand 25.01.20)
- staff working in rural settings and those in hospital and primary care with little or experience in Palliative Care
- a quick reference to help manage 8 common symptoms and several other problems frequently encountered in practice
- information pertains largely to the control of physical problems, in Palliative Care, it is vital address these in the context of the emotional, psycho-social, spiritual, and individual needs of the and family, remembering their wishes and financial constraints
Information / Facts
- Palliative Care Fast Facts
- Pocketbook of Palliative Medicine
- NHS Palliative Care Guidelines
- Palliative Care ACT
- Palliative Care (Christian Grothe) → deutschsprachiger Raum
Dokumentationshilfen
- https://www.dmrz.de/fuer-wen/pflege/palliativpflege-sapv (Stand 25.01.20)
- I met the product owner of Alberta at the CONTANCT professional fair at Südcampus in Erlangen. They are a startup supported by Zollhof to improve the pallicative care management. That means the app is not for the chronically ill patient, but fore care services to improve driving routes, purchasing equipment, seeing the patient record or tracking the patient status.
Summary
- Volume of audio and ring tone adjustable 🡪 Hard of hearing
- Simple menu with good legibility
- Always the same layout for better understanding and clarity
- Easy to understand & large icons
- Large font and understandable text
- Large keys
- Selection of functions by long keystroke with vibration 🡪 to avoid errors
- Notifications large and clearly visible
- Easy to use reminder function
- Medisafe App with HealthKit App: synchronizes measurements with the HealthKit App: blood sugar, blood pressure, weight, pulse and temperature
SwissVoice C50s
- Clear and loud audible tone and extra loud ringtones 🡪 ** Adjust volume (up to 35dB) and ringtone (up to 90dB) & speakerphone**
- Audio boost button (compatible with hearing aids)
- simple menu allows easy operation & easy reading
- All news and photos in the same place
- Simple menu with 3 direct buttons
- Easy to understand icons
- SOS key: notification of up to 5 persons via voice call, SMS, geolocalisation
- Voice output of stored messages & pressed number keys [1]
Koala Phone Launcher Free
- Large readable text and large keys make the phone easy to use
- Includes a simplified SMS editor, a large contact list and a collection of touch-optimized apps (camera, gallery, alarm clock and flashlight)
- Other applications like Maps or Skype can also be started from the Koala menu
- Received messages and missed calls have large and clearly visible notifications [3]
Medisafe Alarm
- Supports in taking the necessary pills and medication in good time
- Reminds of taking, replenishing and dosing the medication reminds [2]
- Easy to use and free app
- also for complex diseases such as cancer
- Contains when measurements are taken and synchronizes them with the HealthKit App: blood sugar, blood pressure, weight, pulse and temperature
- Over 20 different measurements such as blood pressure or weight can be recorded
- Easy to use reminder function with different reminder tones
- Income reports to send as PDF to doctor or nurse
- Management of several accounts possible, for example those of family members [4]
Tägliche Senioren Fitness Übung
- Daily routine exercises that anyone can easily do at home [2]
Mein Notruf
- alarm the emergency service at the push of a button without having to speak
- Advantage: The emergency call centre immediately knows who has made the emergency call, where the person is (GPS function of the smartphone, prerequisite: switched on) 🡪 with callback
- fast and very accurate locating [2]
Lumosity
- Intensive brain training
- Training of memory [2]
- Different workout modes provide the right level for everyone [5]
Bibliography [1] Swissvoice. CS50s. https://www.swissvoice.net/de/produkt/c50s-0 (retrieved 09.11.2019). [2] Radio Regenbogen. Smartphone im Alter: Diese 10 Apps sollten Rentner und Senioren unbedingt kennen!. https://www.regenbogen.de/ratgeber/technik/20190206/die-top-10-senioren-apps-fuers-smartphone (retrieved 09.11.2019). [3] Aptoide. Koala Phone Launcher Free. https://tomas-slavicek-koala-phone.de.aptoide.com/ (retrieved 09.11.2019). [4] Apple Inc. App Store-Vorschau. Medisafe Pille Erinnerung. Arzneimittel korrekt einnehmen. MediSafe Inc. https://apps.apple.com/de/app/arznei-medikamente-alarm/id573916946 (retrieved 09.11.2019). [5] Updated. Powered by Otto. Diese Apps für Senioren erleichtern den Alltag. https://www.otto.de/updated/ratgeber/diese-apps-fuer-senioren-erleichtern-den-alltag-73306/ (retrieved 09.11.2019).
- Data Store Platform
- Secure digital space
- Owned and controlled by user
- acting as repository for personal info
- enabling people to control and share their Personal Data
- delivering a set of web based services enabling them to collect, manage, control and exploit their ubiquitously collected Personal Data
- data collecetd from mobile phones (study with 63 participants)
- preliminary results:
- show improvement over the users’ awareness of their Personal Data and the perceived usefulness of the tool
- so far: most of collected Personal Data were static
- smartphones enable the collection and processing of highly dynamic Personal Data in a pervasive environment
- limited involvement of users in their data life cycle results in lack of transparency concerning to whom and for what purpose their data has been used 🡪 new user centric model for Personal Data management has been proposed (enabling higher control over lifecycle of Data)
- Researchers and companies have started developing repositories e.g openpds.org for various types of Personal Data collected online
- Functionalities: Collection, Sharing, Deletion, Users are provided with visualizations having different levels of aggregation
- Data Organization (Patient Data automatically sensed by smartphones)
- To simplify user experience and control, data have been organized in Data Regions were grouped in 5 Data Regions
- Locations (data from GPS & WiFi)
- Social Interaction (data about SMS & Bluetooth hits)
- Environment (data from external sensors)
- Mood
- Expenses
- Results
- 51% of the participants found very relevant the Individual Aggregated Views and the Collection
- Cancellation was found relevant only for 33%
- Individual Views of communication daily expenses, daily mood states, and interactions were found relevant by more than the 75%
- Functionality of comparing own behaviors with the behaviors of other participants was found useful/very useful (37%) or adequately useful (43%)
- consider transparency in PD systems more important